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Neurological Tags
outstanding debt
Posted by jamesnichols on 2012-05-01 15:58:57
Please help me LIVE a little bit longer.
Posted by SweetLittleDoll on 2012-04-18 01:58:02
I have several cronic illnesses. Including scoliosis:Scoliosis is a sideways curvature of the spine that occurs most often during the growth spurt just before puberty. While scoliosis can be caused by conditions such as cerebral palsy and muscular dystrophy, the cause of most scoliosis is unknown. My scoliosis curve got worse, the spine rotated and twisted, in addition to curving side to side. This caused the ribs on one side of the body to stick out farther than on the other side. Severe scoliosis can caused back pain and difficulty breathing. In my case In severe scoliosis, the rib cage may press against the lungs and heart, making it more difficult to breathe and harder for the heart to pump.I also experience harsh neurological affects of Muscle weakness, Numbness and Abnormal reflexes. To save my life I had to have surgery.
Surgery involves correcting the curve (although not all the way) and fusing the bones in the curve together. The surgeon lays bone grafts across the exposed surface of each vertebra. These grafts will regenerate, grow into the bone, and fuse the vertebrae together. The bones are held in place with one or two metal rods held down with hooks and screws, helping to support the fusion of the vertebrae.I went through all this at age 13. But now with the onset of sevral more cronic illness complication from the surgery that once saved my life now slowly kill me.
Years later I began getting sicker and sicker by the time I was 20 my spine was degenerating causing horrible pain, I had to have my appendix removed, then gallblader went bad. We never dreamed these all had a common factor. Doctors just shook their head proclaiming :you are just so young for your body to be failing like this". Eventually it was discovered I have Lupus and severe arthritus. Lupus is an autoimmune disease, meaning that the body' s immune system mistakenly attacks healthy organs and tissue. Lupus can affect any part of the body, causing inflammation and damage in joints, skin, kidneys, heart, lungs, blood vessels, or the brain. More than 90% of people with lupus have skin rashes, often triggered by exposure to the sun, and about half have kidney and lung problems. Because lupus affects the joints, it is considered a rheumatic (arthritis) disease.
Upon this discovery things began to make sense. So doctors now knowing why began a body wide check up to see what all has been affected. One test was A bone mineral density (BMD) test measures how much calcium and other types of minerals are present in a section of your bone. Your health care provider uses this test, along with other risk factors, to predict your risk of bone fractures in the future and detect osteoporosis. Bone fracture risk is highest in people with osteoporosis. They found I indeed had osteoporosis at the age of 22. SO now My bones are weaking causing damage areas all over my body, but the most serious being in my spine. Now comes the arthritis/lupus, they see these damaged areas and my own imune system attacks. Eating at the damaged areas creating even more damage, which increases the area the lupus attacks. It is a vicious circle. I have now been treated with medication over 10 yrs. But they can only slow the illness there is no cure, and dure to my scoliosis and the metal rods in my back surgical treatment options are very limited.
The damage is so severe I was decared legally disabled by the age of 23. My only income is SSI. I have to support my children and I on 658.00 a month. Thank God the court issued my ex to pay my rent in lue of child support. I am asking for help to cover upcoming medical bills. In the last 14 months I have had 5 seperate kidney surgery. My right kidney is damaged and I will soon be having a 6th surgery. This one to remove damaged section of the tube that leads from the kidney to bladder. then they will reattach at a higher section of bladder. I will aslo be having several Jaw surgeries. Due to exposure to radiation, osteoperosis a excessive vomiting of stomache acid my teeth are breaking and falling out. The doctor needs to repair what they can and put in inplants for what they cant. This will slow the degineration of my jaw. Without this treatment my jaw is going to cave in. Currently I am only able to eat mushy foods. I have drastically lost weight and my body is stuggling to heal due to the stress, pain and infection. So I hunbly beg of you to help me 1.00 or 50.00 anything would help. These procedures will not only improve my quality of life but aslo help extend my time here on earth just a little ehile longer. I just want to be with my kids as long as I can.Whith each dollar you donate its like adding an hour to my life.....What would you give for a few more hours with the ones you love?
Please help me LIVE a little bit longer.
Posted by SweetLittleDoll on 2012-04-18 01:58:01
I have several cronic illnesses. Including scoliosis:Scoliosis is a sideways curvature of the spine that occurs most often during the growth spurt just before puberty. While scoliosis can be caused by conditions such as cerebral palsy and muscular dystrophy, the cause of most scoliosis is unknown. My scoliosis curve got worse, the spine rotated and twisted, in addition to curving side to side. This caused the ribs on one side of the body to stick out farther than on the other side. Severe scoliosis can caused back pain and difficulty breathing. In my case In severe scoliosis, the rib cage may press against the lungs and heart, making it more difficult to breathe and harder for the heart to pump.I also experience harsh neurological affects of Muscle weakness, Numbness and Abnormal reflexes. To save my life I had to have surgery.
Surgery involves correcting the curve (although not all the way) and fusing the bones in the curve together. The surgeon lays bone grafts across the exposed surface of each vertebra. These grafts will regenerate, grow into the bone, and fuse the vertebrae together. The bones are held in place with one or two metal rods held down with hooks and screws, helping to support the fusion of the vertebrae.I went through all this at age 13. But now with the onset of sevral more cronic illness complication from the surgery that once saved my life now slowly kill me.
Years later I began getting sicker and sicker by the time I was 20 my spine was degenerating causing horrible pain, I had to have my appendix removed, then gallblader went bad. We never dreamed these all had a common factor. Doctors just shook their head proclaiming :you are just so young for your body to be failing like this". Eventually it was discovered I have Lupus and severe arthritus. Lupus is an autoimmune disease, meaning that the body' s immune system mistakenly attacks healthy organs and tissue. Lupus can affect any part of the body, causing inflammation and damage in joints, skin, kidneys, heart, lungs, blood vessels, or the brain. More than 90% of people with lupus have skin rashes, often triggered by exposure to the sun, and about half have kidney and lung problems. Because lupus affects the joints, it is considered a rheumatic (arthritis) disease.
Upon this discovery things began to make sense. So doctors now knowing why began a body wide check up to see what all has been affected. One test was A bone mineral density (BMD) test measures how much calcium and other types of minerals are present in a section of your bone. Your health care provider uses this test, along with other risk factors, to predict your risk of bone fractures in the future and detect osteoporosis. Bone fracture risk is highest in people with osteoporosis. They found I indeed had osteoporosis at the age of 22. SO now My bones are weaking causing damage areas all over my body, but the most serious being in my spine. Now comes the arthritis/lupus, they see these damaged areas and my own imune system attacks. Eating at the damaged areas creating even more damage, which increases the area the lupus attacks. It is a vicious circle. I have now been treated with medication over 10 yrs. But they can only slow the illness there is no cure, and dure to my scoliosis and the metal rods in my back surgical treatment options are very limited.
The damage is so severe I was decared legally disabled by the age of 23. My only income is SSI. I have to support my children and I on 658.00 a month. Thank God the court issued my ex to pay my rent in lue of child support. I am asking for help to cover upcoming medical bills. In the last 14 months I have had 5 seperate kidney surgery. My right kidney is damaged and I will soon be having a 6th surgery. This one to remove damaged section of the tube that leads from the kidney to bladder. then they will reattach at a higher section of bladder. I will aslo be having several Jaw surgeries. Due to exposure to radiation, osteoperosis a excessive vomiting of stomache acid my teeth are breaking and falling out. The doctor needs to repair what they can and put in inplants for what they cant. This will slow the degineration of my jaw. Without this treatment my jaw is going to cave in. Currently I am only able to eat mushy foods. I have drastically lost weight and my body is stuggling to heal due to the stress, pain and infection. So I hunbly beg of you to help me 1.00 or 50.00 anything would help. These procedures will not only improve my quality of life but aslo help extend my time here on earth just a little ehile longer. I just want to be with my kids as long as I can.Whith each dollar you donate its like adding an hour to my life.....What would you give for a few more hours with the ones you love?
Air Conditioner Repair So I Can Get To My Medical Visits
Posted by steph68461 on 2012-03-16 18:58:40
My name is Stephanie. Following the death of both my parents in a car accident 5 years ago August my health has been in a steady decline. I suffer from neurological issues that will soon have me in a wheelchair, and advanced COPD that means I have to have Oxygen continuously. Yesterday I had to go the doctors in 85 degree heat without any air conditioning in my van. By the time I got to the medical center and tried to find this new doctors location I ended up collapsing twice between the walking and breathing. I weigh 83 pounds at 5'5" and I can't carry the oxygen with me when I have to exit the vehicle. Ultimately I ended up in the emergency room.
I live with my daughter and grandson of 6 years. My grandson was in the car when my parents were killed and suffered a major brain injury at 13 months. I'm happy to report though that after months of hospitalization he is right as rain and is mad at me currently ;o) because I'm on my computer which he adores playing with. My daughter suffers from PTSD since the accident my parents were killed in. She cannot drive without someone in the car and she was going to go with me yesterday but the heat was so bad that we were concerned about Gavin in the back in my black 1994 Ford Astro van. It was just way too hot for him and with her PTSD we HAVE to go through town to get anywhere or she will lose it so there would not have been any steady air flow.
It's been a long 5 years. My parents and I jointly owned a duplex. Their deaths were the beginning of the most miserable time of my life. When I divorced it was jointly decided that it would better if I lived in the upstairs apartment so they could be there for the kids while I worked. Over 16 years we became so close that their deaths nearly destroyed me. I paid for the last 15 years on the note of the house, my buy in and we all lived there incredibly content and happy. My parents were my best friends.
After their deaths during the mortgage meltdown, credit locks, and the economic fallout my career of 16 years was one of the first to go. I worked in the non-profit sector designing programming for inner-city communities with a specific focus on youth. So 8 months after their deaths the funding streams I used for the programming dried up and a job I loved disappeared.
Life insurance was enough to cover their debt with a little left over because they didn't carry much but in the end I lost my home of 16 years to the insurance company that covered my daughters son through work when they filed a $ 90,000.00 lien against my home. So 7 months after losing my job I also lost a home I loved. So I experienced 3 deaths within the span of a little over a year.
Because I was unemployed so long and had to use my cards to keep the lights on so to speak my credit is not good. So I can't borrow the funds or even charge a repair for the car.
I can no longer go to doctors visits alone. I'm too weak to walk very far without help and I can't carry the oxygen canister on my own. So I need my daughter for these visits.
Like anyone with severe health issues I'm buried in bills but what I really need help on is funds that will me to fix the air conditioning in my van which despite it's age runs like a champ. I have a physicians assistant who comes into my home to work with my but getting to the specialists has become real concern.
My daughter even with her PTSD has reached a point where she doesn't want me going alone. I was supposed to call her when I reached the doctors the other day when I collapsed the 2nd time and they took me to the specialists office I asked the receptionist to call my daughter. She didn't and she left my daughter terrified that something horrible had happened to me. I don't carry a cell I can't afford one. My daughter was getting better about both driving and me driving myself; because of this receptionist my daughter has now had a huge set back. I have to see that doctor again next week and I can't take them without air conditioning so what I'm going to have to do is make sure I find someone that sit with my daughter while I'm gone to help keep her anxiety level low. I don't have any choice I have to get there. I won't have anyone to carry my oxygen but I'm hoping I can in there.
Anything you can do would be greatly appreciated. I am more than happy to pay it forward as soon as I can. I have been a lifelong contributor to various causes and I know people are in dire straights right now. We all need help in one form or another. I would never ask if I could do this myself. Please forgive me.
If you would like to know more about the accident and my Grandson and his Grandmother who after losing her home and moving into a 3rd floor apartment made a terrible mistake in her depressed state go to http://ontheirway.vanderbiltchildrens.org/?article=7511 this a feature story Vanderbilt Children's Hospital did in their print and web magazine.
To survive until SSD
Posted by Spiely765 on 2012-03-13 12:58:23
Help with travel to hospital
Posted by SwsMum on 2012-02-16 15:58:30
Thanks for taking time to read this post.
regards
Son's graduation from boot camp before deployment.
Posted by greatful on 2012-02-01 15:58:08
I am disabled due to a neurological condition and unable to work since March of 2011. I have drained my bank account paying medical bills.
My son is graduating from Army boot camp in March. I need financial help to get there. He will be deployed immediately after graduation. I need to travel about 800 miles from Northern Ohio to Fort Benning, GA and return trip home. My son's goal is to be an airborne ranger and I am very proud of him for unselfishly serving his country! Thank you for any help you can donate. I am very greatful and very much appreciative.
unbreak my heart....
Posted by brokenhearted on 2012-01-20 17:58:04
I'm raising funds for ICD replacement surgery, to go see a HOCM specialist (Dr. Craig Asher) at Cleveland Clinic in S. Florida and to have advanced testing through Vanderbilt Autonomic Center in Tennessee.
I don't want to admit I need help; I've always been a strong, independent person who took care of everything and everyone. In August 2009, my whole world changed. After my procedure, I applied for disability and was turned down twice and had to hire an attorney. I went from being "super" mom, wife & friend and care taker of an Autistic son to being the one who had to be taken care of.
So how did I get to the point I have to ask others for help? Shortly before Father's Day 2009, I fell and broke my foot. When it didn't heal, I went to my primary with a broken foot and came out with a broken heart. After the shock wore off from the doctor telling me that I was going to die if I didn't have valve surgery; I started asking questions.
I didn't quite believe him and thought he was over reacting when he told me I was going to die because I walked and ran 3-5 times weekly and even did strenuous yard work. I felt fine and have 4 children aged 9-26 and kept up with them and stayed very active in things they did; but I was a ticking time bomb just waiting for the right time for my heart to stop.
He sent me to several specialists who said I had nothing really wrong, just some mild valve problems associated with aging; which was a huge relief. Everything seemed normal except my EKG's; they showed I had a huge amount of PVC's (premature ventricular contractions) roughly 50,000 âextraâ heartbeats daily.
My heart didn't really beat fully; it only quivered like a bowl of jello day in day out. The problem with it beating like this is, the heart becomes very ineffective at pumping and your cardiac output drops and heart muscle damage can occur.
The cardiologist and electrophysiologist I saw did extensive testing and recommended more testing in the hospital. I went in for a sleep study, Tilt table test and EP Study with Ablation. The sleep study revealed I had moderately severe sleep apnea and my oxygen goes from 99% down to 73% at night making it very dangerous for me when I sleep.
The tilt table test was the first inkling that something dangerous was going on inside. I fainted and had no palpable pulse; which is a very rare thing to happen. I was diagnosed with Dysautonomia - Neurocardiogenic Syncope and Orthostatic Intolerance.
I then had an ablation to burn the extra pathways in my heart and get rid of the pvc's I was living with daily. I was told this would be a relatively easy process and given a 95% success rate to get rid of the extra beats completely but it never crossed my mind that anything would happen.
What preliminary tests failed to show, is the pattern and origin of my arrhythmias were in a very dangerous spot to ablate - the RV Apex â in the bottom thin underside of the heart.
During the EP Study, I went into cardiac arrest and my heart stopped completely with no rhythm they could shock (Asystole), some how it started again for a few minutes but then stopped again. They were able to shock me back to normal sinus rhythm and luckily, the third time it stopped; it restarted on it's own so I didn't have to be shocked again.
I was diagnosed with Polymorphic Ventricular Tachycardia; a very dangerous, life threatening arrhythmia. I stayed in the hospital for 4 days trying to find a cause and to be prepped for an ICD (implantable cardiac defibrillator).
It took a cardiac catherization to finally find the problem and to show I had HOCM (obstructive Hypertrophic Cardiomyopathy) and internal high pressures in my valves.
My regular EP had to go out of town after the first procedure, so his partner had to do the implant; he wasn't as skilled as my regular dr and botched the lead implants.
When they checked the leads the next day before releasing me, they found a problem with the lead placement but the dr said it was "ok" and sent me home. Since then, I've had nothing but problems with the unit and been told by several other EP's I need to have the leads replaced and the ICD could be causing part of my problems.
Doctors think my other problems are related to HOCM (obstructive hypertrophic cardiomyopathy) and Autonomic nervous system failure and when I faint, my heart stops briefly causing damage each time this happens.
After the procedure, my body started failing from the damage it sustained the 4 times my heart stopped. My original cardiologist told me I would be in a wheel chair and totally dependent on others for everything by the time I'm 50; which is daunting because in March I'll be 45 and I can't deny the facts - my body is failing.
I was put on 10,000g sodium daily, water/fluid loading, Midodrine (insurance won't cover it $312 - 30 day supply), Propanolol, Pantoprazole, pain meds, suppression hose and binders as well as having to stay supine the majority of the day - which caused my heart failure to worsen and my EF (ejection fraction) to go down.
Nothing the doctor's have tried has helped, I still faint and my heart stops on a daily basis and I never know from one day to the next if something is going to trigger fluid build up and I have an acute attack.
In June 2011 I fainted falling into the side of my tiled tub, lacerating the side of my head in the process, severely sprained my neck and suffered a concussion. After that episode, I became a bit more cautious with every move I make because the dr found declining neurological functioning and mild brain damage; he said any more falls could lead to permanent major brain damage.
With so many previous medical bills and co-pays, I can't afford the 20% co-insurance to have my ICD replaced and Mayo Clinic wants a $5,000 deposit up front even with insurance. My ICD alone is $125,000, leads another $30,000 and then there's the doctor and hospital fees; which I won't know the cost until the procedure is done.
Each heart rhythm specialist and cardiologist I see tell me there is nothing more they can do after going over my history and treatments; I have a long hard fight to go and I have to just be thankful each day I'm alive. Some days I'm really glad I made it through, other days when the problems and pain take over; I wish the dr's had let me die.
I developed PTSD after the procedure, panic disorder and extreme agoraphobia. I went into such a deep depression over my health issues, I was afraid I would never see the lighter side of things again. I finally went to see a psychologist who prescribed Lamictal and diagnosed me with Bi-Polar disorder which has helped greatly but I still struggle on a daily basis.
One day we were just the ânormalâ every day family and the toughest thing we had to deal with is a child with Autism. Then; our whole lives changed in an instant we were dealing with mounting medical bills, expensive prescriptions, tests, appointments, loss of income and dealing with the possibility of death on a daily basis.
You just never know what the day may bring, so keep those you love close to you and never take one second for granted.
From the bottom of my heart thank you - even if it's support to say hey; I'm here if you need to talk or I know how you're feeling.
unbreak my heart....
Posted by brokenhearted on 2012-01-20 16:58:37
I'm raising funds for ICD replacement surgery, to go see a HOCM specialist (Dr. Craig Asher) at Cleveland Clinic in S. Florida and to have advanced testing through Vanderbilt Autonomic Center in Tennessee.
I don't want to admit I need help; I've always been a strong, independent person who took care of everything and everyone. In August 2009, my whole world changed. After my procedure, I applied for disability and was turned down twice and had to hire an attorney. I went from being "super" mom, wife & friend and care taker of an Autistic son to being the one who had to be taken care of.
So how did I get to the point I have to ask others for help? Shortly before Father's Day 2009, I fell and broke my foot. When it didn't heal, I went to my primary with a broken foot and came out with a broken heart. After the shock wore off from the doctor telling me that I was going to die if I didn't have valve surgery; I started asking questions.
I didn't quite believe him and thought he was over reacting when he told me I was going to die because I walked and ran 3-5 times weekly and even did strenuous yard work. I felt fine and have 4 children aged 9-26 and kept up with them and stayed very active in things they did; but I was a ticking time bomb just waiting for the right time for my heart to stop.
He sent me to several specialists who said I had nothing really wrong, just some mild valve problems associated with aging; which was a huge relief. Everything seemed normal except my EKG's; they showed I had a huge amount of PVC's (premature ventricular contractions) roughly 50,000 âextraâ heartbeats daily.
My heart didn't really beat fully; it only quivered like a bowl of jello day in day out. The problem with it beating like this is, the heart becomes very ineffective at pumping and your cardiac output drops and heart muscle damage can occur.
The cardiologist and electrophysiologist I saw did extensive testing and recommended more testing in the hospital. I went in for a sleep study, Tilt table test and EP Study with Ablation. The sleep study revealed I had moderately severe sleep apnea and my oxygen goes from 99% down to 73% at night making it very dangerous for me when I sleep.
The tilt table test was the first inkling that something dangerous was going on inside. I fainted and had no palpable pulse; which is a very rare thing to happen. I was diagnosed with Dysautonomia - Neurocardiogenic Syncope and Orthostatic Intolerance.
I then had an ablation to burn the extra pathways in my heart and get rid of the pvc's I was living with daily. I was told this would be a relatively easy process and given a 95% success rate to get rid of the extra beats completely but it never crossed my mind that anything would happen.
What preliminary tests failed to show, is the pattern and origin of my arrhythmias were in a very dangerous spot to ablate - the RV Apex â in the bottom thin underside of the heart.
During the EP Study, I went into cardiac arrest and my heart stopped completely with no rhythm they could shock (Asystole), some how it started again for a few minutes but then stopped again. They were able to shock me back to normal sinus rhythm and luckily, the third time it stopped; it restarted on it's own so I didn't have to be shocked again.
I was diagnosed with Polymorphic Ventricular Tachycardia; a very dangerous, life threatening arrhythmia. I stayed in the hospital for 4 days trying to find a cause and to be prepped for an ICD (implantable cardiac defibrillator).
It took a cardiac catherization to finally find the problem and to show I had HOCM (obstructive Hypertrophic Cardiomyopathy) and internal high pressures in my valves.
My regular EP had to go out of town after the first procedure, so his partner had to do the implant; he wasn't as skilled as my regular dr and botched the lead implants.
When they checked the leads the next day before releasing me, they found a problem with the lead placement but the dr said it was "ok" and sent me home. Since then, I've had nothing but problems with the unit and been told by several other EP's I need to have the leads replaced and the ICD could be causing part of my problems.
Doctors think my other problems are related to HOCM (obstructive hypertrophic cardiomyopathy) and Autonomic nervous system failure and when I faint, my heart stops briefly causing damage each time this happens.
After the procedure, my body started failing from the damage it sustained the 4 times my heart stopped. My original cardiologist told me I would be in a wheel chair and totally dependent on others for everything by the time I'm 50; which is daunting because in March I'll be 45 and I can't deny the facts - my body is failing.
I was put on 10,000g sodium daily, water/fluid loading, Midodrine (insurance won't cover it $312 - 30 day supply), Propanolol, Pantoprazole, pain meds, suppression hose and binders as well as having to stay supine the majority of the day - which caused my heart failure to worsen and my EF (ejection fraction) to go down.
Nothing the doctor's have tried has helped, I still faint and my heart stops on a daily basis and I never know from one day to the next if something is going to trigger fluid build up and I have an acute attack.
In June 2011 I fainted falling into the side of my tiled tub, lacerating the side of my head in the process, severely sprained my neck and suffered a concussion. After that episode, I became a bit more cautious with every move I make because the dr found declining neurological functioning and mild brain damage; he said any more falls could lead to permanent major brain damage.
With so many previous medical bills and co-pays, I can't afford the 20% co-insurance to have my ICD replaced and Mayo Clinic wants a $5,000 deposit up front even with insurance. My ICD alone is $125,000, leads another $30,000 and then there's the doctor and hospital fees; which I won't know the cost until the procedure is done.
Each heart rhythm specialist and cardiologist I see tell me there is nothing more they can do after going over my history and treatments; I have a long hard fight to go and I have to just be thankful each day I'm alive. Some days I'm really glad I made it through, other days when the problems and pain take over; I wish the dr's had let me die.
I developed PTSD after the procedure, panic disorder and extreme agoraphobia. I went into such a deep depression over my health issues, I was afraid I would never see the lighter side of things again. I finally went to see a psychologist who prescribed Lamictal and diagnosed me with Bi-Polar disorder which has helped greatly but I still struggle on a daily basis.
One day we were just the ânormalâ every day family and the toughest thing we had to deal with is a child with Autism. Then; our whole lives changed in an instant we were dealing with mounting medical bills, expensive prescriptions, tests, appointments, loss of income and dealing with the possibility of death on a daily basis.
You just never know what the day may bring, so keep those you love close to you and never take one second for granted.
From the bottom of my heart thank you - even if it's support to say hey; I'm here if you need to talk or I know how you're feeling.
Any help appreciated
Posted by htownpostman on 2011-12-30 01:58:50
The bills are piling up, the medicine is expensive.
Between my hospital stays, i also need the care for my son who has a disease called NF1 (Neurofibromitosis)IT is a neurological disorder that among his speech delay (he is 9) he is also required to take blood pressure medicine, and the risk of a heart attack in quite high.
I notice people put some personal info on here,well, my name is Howie and I live in the Houston area, if you would like to send me a text, or to valiate that I am real and not some con artist in another country, my cell is 832-279-7571.
There are hundreds of people on here, if not thousands asking for money, so, if i am fortunate enough to have my story catch your eye, any help would be appreciated.
Logan's Heros
Posted by cori00125 on 2011-09-17 17:58:47
On February 18th, 2011 our son Logan (age 10) was diagnosed with a large brain tumor. He was not having many symptoms only occasional headaches. I was concerned that he may have been developing migraines and so I took him to see our family physician. His physical exam was normal including a rather thorough neurological exam. Dr. Arntz agreed with my initial thought and prescribed him some migraine medication. What a relief! He asked us to get a CT scan of Logan's head only as a precaution and he even stated that he didn't think there was any real concern, just a precaution. 5 days later, we were heading to the University of Michigan; Mott's childrens hospital because his precautionary CT scan had confirmed the worst for us. A 6 cm brain tumor in the posterior fossa of Logan's brain. Causing the cerebral spinal fluid to back up and create pressure in his head (hence the headaches).
Before leaving the house for the hospital we gave Logan a brief description of the problem, and explained to him that we didn't know what was going to happen next but we were going to the hospital to find out. You could see the worry on him but he was tough, shrugged his shoulders and said, "Well, I guess I better call it something, I think I'll name it Steve." So off we went, notifying family on the way to the hospital, and completely sick to my stomach.
Three days later we would embark on the scariest days of my life. Logan was promptly scheduled for surgery the following Monday and we were told there was a high probability that the tumor was cancerous. Dr. Cormac Maher performed 14 hours of brain surgery on Logan on Monday February 21st, and confirmed our fears that Logan indeed had a cancerous brain tumor called medulloblastoma. Then more bad news the post operative MRI showed that they had been able to remove all of the tumor and Logan would need more surgery. The next day he underwent another 6 hours of brain surgery. We caught it early but based on where the tumor sat he may not be able to talk or walk normally for 3-6 months. Lucky for us he talks and walks very well all things considered. But there has been radiation therapy and chemo therapy will continue until February or March of next year. There is a 75-80% chance of survivability, I feel blessed with those odds.
Logan is doing very well but this situation has put an incredible financial burden on us. I am falling behind on bills and need help. Andy is working constantly and I even started a second job on the weekends to try to help supplement the lost income from prescriptions, gas to and from the hospital, and just having to take time off work for appointments and Logan's sick days... I don't know what else to do. The banks have tried thankfully to work with us but our circumstance is not going to change for quite awhile longer. Our family's do not have a lot of money, and have already tried to help so much that I think it may be putting a strain on them as well. The church sends gas cards occasionally but there is just not enough to keep us going for the next year.
Here' s the kicker, Logan started his own Relay for Life team. I had taken him to a local expo about 3 weeks after he had been discharged from the hospital because I thought it would be good exercise for him to walk around and there would be lot's to look at, and there was a booth for the American Cancer Society. He walked up to the lady at the booth and he said " How old do you have to be to have a team?" She signed him up on the spot. Logan Bailey's Super Survivors have raised $8300.00 for the American Cancer Society! He's only a little more than $1600.00 away from his goal of raising $10000.00 for the Relay for Life. We've held auctions, bake sales, and concerts. It's been a wonderful distraction for him and he is super excited about reaching that fund-raising goal. We have asked our friends to contribute to his goals in lieu of giving us personal financial assistance. It's more important to me that his endeavors to do more for others, are successful.
We cannot change Logan's circumstance. He will always be a brain cancer survivor, and I will forever be a medullo-mom. But, if we can make this even minutely easier for others having to face it after us then we will do it. Logan donated "Steve the brain tumor" to medical research and he volunteered to participate in a medical research trial for his treatments. We hope that the money raised for the American Cancer Society will make a difference in research and support for anyone suffering with a cancer diagnosis. We hope that the research will make the work of wonderful, selfless, people like Dr. Maher and his team easier and more successful. If I had been diagnosed with this same type of cancer at the age of ten it would have been a terminal diagnosis... the research is working!!
I need help, I need financial help for my family so that we can stop the worrying over finances and concentrate on bringing our entire family through this successfully looking at it in a positive light and remembering that we did it with hearts full of love and with others in mind. Logan is a truly remarkable child and I am so proud of him. I anxiously await your response Thank you for your consideration.
Logan Bailey's Biggest Fan!!
A Place to Lay My Head at Night
Posted by LovingAuntie on 2011-07-21 22:58:41
In most instances, when you hear of someone being diagnosed with HD, itâs more like being handed a death sentence. This is due to the fact that there is no known cure and for many, the course of their illness for the rest of their lives is outright terrifying. Care and treatment for HD is extremely costly, and can be arduous, rigorous and intense, and therefore persons with this illness are usually placed in residential care and treatment facilities to live out their days.
My niece has chosen to live a full and meaningful life with HD and through the Grace of God, and all who step up to support her in this effort. She is currently residing on her own, and has shown amazing courage, strength and unique humor each and every step of the way. Most recently she mentioned to me in a telephone conversation that she saw a televised showing of a young girls wish being granted by the Make a Wish Foundation, and how she could use them to get a midsized sofa bed for herself, which she currently needs for her studio apartment.
After an exhaustive internet search for sites that grant adult wishes, I came upon this site and am formally submitting this request to you for your consideration. There is a Big Lots in the area where my niece resides which has a sofa bed for $400. If you are in a position to donate some or all of the funds towards this purchase please feel free to do so. If you find yourself in a position to purchase the sofa sleeper and have it delivered to her, this too is welcomed. Either way, contact us so we can make arrangements.
And if youâre feeling despondent because you have no money to contribute, you can assist us in this way. Weâve had tremendous success so far this year in garnering support for the Huntingtonâs Disease Parity Act, which would make it easier for people with HD to receive Social Security Disability and Medicare benefits. Prior to the onset of HD, my niece and most other adults affected with this disease were tax paying citizens like you and I. We are up to 83 cosponsors of H.R. 718 in the House and 6 cosponsors of S. 648 in the Senate, and we need YOUR help to get Rep. Grace F. Napolitano on board. You can do so by writing to her as well as your own congresspersons to support these bills.
Thank you for your consideration and effort.
Just being honest
Posted by waterboy60 on 2011-05-26 07:58:57
My 18 yr. old daughter graduates this year. We are so very proud of her because she has struggled throughout school and has really fought to get where she is today. One of her wishes throughout the years was to be able to go on a week long cruise for her graduation present. For the past several years we have managed to scrape financially and come up with the money to fulfill her wishes and have saved to make this trip happen. Recently i have had to have extensive medical treatment for a neurological disease and the medical bills have been mounting which has caused my wife and i to take the final payment saved up for the surprise trip for my daughter and use it for medical. This really hurts because we had really hoped to do this for her because of the struggles she has overcome. As long as she has been old enough to hold a job, she has worked and helped us several times with bills in order to just stay afloat and we wish to give back to her.
At this point, we have attempted to borrow the money to make this happen but are unable to do so and cannot take on another monthly payment. Generous donations will help us make this dream come true for her.
We are in need of just $1,300. Thank you
I will help people with my degree! I need financial help to be able to go to Grad school.
Posted by OneGirl on 2011-05-11 15:58:55
My Name is Alyssa and I will be starting my first semester of Graduate School in August. My field of study is Speech and Language Pathology. I absolutely love my field but this particular field requires you to have at least a Masters degree to practice. After my grandfather had a stroke he had to go to a Speech Pathologist to help him re learn how to speak properly and to re train him on how to talk. The first time I took him to his appointment is the moment I knew that I wanted to become a Speech Pathologist and help others just like my Grandfather. I have completed my Bachelors degree and now am about to start my Graduate studies. I have 2 years of non stop, year round school to finish to complete my Masters. This is where my asking for help comes in. I had to work to put myself through my four years of college and have received no help from anyone. I have never been able to save much because of all my expenses with school. Now that I have been accepted to Graduate school I have been calculating the cost I will have over the next 2 years. The results have greatly discouraged me and to be honest have made me wonder if I will ever be able to do it. With all of my expenses including tuition, books, rent, bills, food, and other living expenses I have come to the conservative assessment that i will need around $50,000. Compared to the average price of grad school these days almost being $29,000 per semester, I figure if I live very conservative that I can just about get through it all with only spending $50,000. The college tells us not only in person but it says on their web site as well that you can not work and be in this program at the same time. Only 15 people were accepted into the Speech and Language Pathology program at my school and it is made clear to us that it is very intense and time demanding and that working outside of going through the program is not recommended and in fact discouraged. They tell us if we plan on working that it is recommended we wait to go through their Masters program. So here I am, I have tried applying for Grants and loans and I cannot seem to catch a break. I apologize for you having to read this long request for help but I want you to know that if you do decide to help me that you will be helping me reach my goals and dreams and in turn you will help an unlimited number of other people through my career who have speech disabilities for any number of reasons who need help to overcome it. Because of my Grandfather I am hoping to specialize in those who suffer from brain injuries or neurological damage and be able to give them the new life my Grandfather was given through his rehabilitation. He past away a few weeks ago and he will be forever missed. In honor of my Grandfather I have taken on his email address as my own. I have used it to set up the PayPal account as a sort of dedication to him in honor of him being the reason I have chosen this field of study and made it my goal in life. Any amount of money your heart tells you to donate, even if it is just one cent will help and will be greatly appreciated and put to good use and towards a life of helping others. I thank you for your time in reading this and for your help and support. I hope you have a wonderful day or night wherever you may be!
With humble thanks and appreciation
-Alyssa
PLEASE, PLEASE! I have NEVER done this before.. but the few people I know told me to try..
Posted by helpmoquick on 2011-03-30 01:58:11
I am a single female and I became disabled @ 26, it's now 10 years later and I have managed to too keep my head above water for all this time, but the person I live with is suddenly leaving to go back East for a job and I have to vacate our apartment. I have 2 days to get into a new place!! I already have volenteers to move me, and I will get my monthly disability check of $696. on the 1st, I just need assistance with the deposit! I saw on 20/20 (or some other news show) that there are many people who are more than willing to help people in need, you just have to reach out to get connected. I have never begged or "cyber begged" for a thing, but I don't know what else to do! I am a good person.. and promise to do what I can to pay back, or pay-it-forward any help I may receive. My disability is a result of my father having been showered with Agent Orange in Vietnam 3 years before I was born.. 2 of my 3 siblings also have neurological problems and the 3rd has a heart condition. (my father passed when I was 16 due to military related issues). I am working on getting veterans assistance, but having to move literally fell in my lap 2 days ago and I don't know what I will do. So, I ask PLEASE, help me someone. We live in a state where Gov programs are being cut Every single day and the $$ problems are endless, but at the same time have some of the wealthiest people with available extra resources. I can varify any of my info and am willing to do anything I can for help, so PLEASE contact me. I wish things were different and know I will be OK once I get relocated, but that will only happen if someone - or maybe several generous people HELP.
I have a PayPal account so I can receive donations thru it, or you can contact me thru email for further options. PayPal address is helpmoquick@gmail.com Please keep in mind if you send as a "gift" neither of us will be charged a fee. THANK YOU in advance, I look forward to connecting with you.
PLEASE, PLEASE! I have NEVER done this before.. but the few people I know told me to try..
Posted by helpmoquick on 2011-03-30 01:58:09
I am a single female and I became disabled @ 26, it's now 10 years later and I have managed to too keep my head above water for all this time, but the person I live with is suddenly leaving to go back East for a job and I have to vacate our apartment. I have 2 days to get into a new place!! I already have volenteers to move me, and I will get my monthly disability check of $696. on the 1st, I just need assistance with the deposit! I saw on 20/20 (or some other news show) that there are many people who are more than willing to help people in need, you just have to reach out to get connected. I have never begged or "cyber begged" for a thing, but I don't know what else to do! I am a good person.. and promise to do what I can to pay back, or pay-it-forward any help I may receive. My disability is a result of my father having been showered with Agent Orange in Vietnam 3 years before I was born.. 2 of my 3 siblings also have neurological problems and the 3rd has a heart condition. (my father passed when I was 16 due to military related issues). I am working on getting veterans assistance, but having to move literally fell in my lap 2 days ago and I don't know what I will do. So, I ask PLEASE, help me someone. We live in a state where Gov programs are being cut Every single day and the $$ problems are endless, but at the same time have some of the wealthiest people with available extra resources. I can varify any of my info and am willing to do anything I can for help, so PLEASE contact me. I wish things were different and know I will be OK once I get relocated, but that will only happen if someone - or maybe several generous people HELP.
I have a PayPal account so I can receive donations thru it, or you can contact me thru email for further options. PayPal address is helpmoquick@gmail.com Please keep in mind if you send as a "gift" neither of us will be charged a fee. THANK YOU in advance, I look forward to connecting with you.
PLEASE, PLEASE! I have NEVER done this before..
Posted by helpmoquick on 2011-03-30 01:58:07
I am a single female and I became disabled @ 26, it's now 10 years later and I have managed to too keep my head above water for all this time, but the person I live with is suddenly leaving to go back East for a job and I have to vacate our apartment. I have 2 days to get into a new place!! I already have volenteers to move me, and I will get my monthly disability check of $696. on the 1st, I just need assistance with the deposit! I saw on 20/20 (or some other news show) that there are many people who are more than willing to help people in need, you just have to reach out to get connected. I have never begged or "cyber begged" for a thing, but I don't know what else to do! I am a good person.. and promise to do what I can to pay back, or pay-it-forward any help I may receive. My disability is a result of my father having been showered with Agent Orange in Vietnam 3 years before I was born.. 2 of my 3 siblings also have neurological problems and the 3rd has a heart condition. (my father passed when I was 16 due to military related issues). I am working on getting veterans assistance, but having to move literally fell in my lap 2 days ago and I don't know what I will do. So, I ask PLEASE, help me someone. We live in a state where Gov programs are being cut Every single day and the $$ problems are endless, but at the same time have some of the wealthiest people with available extra resources. I can varify any of my info and am willing to do anything I can for help, so PLEASE contact me. I wish things were different and know I will be OK once I get relocated, but that will only happen if someone - or maybe several generous people HELP.
I have a PayPal account so I can receive donations thru it, or you can contact me thru email for further options. PayPal address is helpmoquick@gmail.com Please keep in mind if you send as a "gift" neither of us will be charged a fee. THANK YOU in advance, I look forward to connecting with you.
Please help me pay off debts, so I can have fresh slate to build ministry!
Posted by bensusanj on 2011-03-06 00:58:31
Desperate Need For Help-Medical and Personal
Posted by lilwitchygrl on 2011-01-16 12:58:58
Funds Appeal for Urgent Brain Surgery
Posted by hi75pa on 2010-09-18 11:58:58
I lost my job when I started ailing and the father of my kids left me when I got crippled. My parents are old and doing the best they can to help with the kids. I just need to get better so that I can go back to taking care of my kids like I did before. Please help me. The operation is scheduled for November 2010.
Whatever help we can get we shall be eternally grateful.
Thank you.
Funds Appeal for Urgent Brain Surgery
Posted by hi75pa on 2010-09-13 06:58:58
I lost my job when I started ailing and the father of my kids left me when I got crippled. My parents are old and doing the best they can to help with the kids. I just need to get better so that I can go back to taking care of my kids like I did before. Please help me. The operation is scheduled for November.
Whatever help we can get we shall be eternally grateful.
Thank you.
Please help me, your contribution is very important to me
Posted by cklow on 2010-08-13 21:58:58
Alright, now I would like to tell all of you about the problems that I'm experiencing now. I'm a ' (MS) Multiple Sclerosis ' patient now. MS is a neurological illness. It has no cure found yet at the moment. MS is a disabling illness. Every patient has a different disabling symptoms such as blindness, disability to walk and a few more. You can google it to find out more about MS.
For me, I'm having an 'intentional tremor' symptom on my hands. My hands will tremor whenever I'm trying to do something using it. For example, if I intend to write something with my hand, it will begin to tremor when I'm writing. Actually I'm a 3rd year engineering student but due to the illness that I've contracted, I could not persue my degee anymore.
I feel very sad for disappointing my dad. He has worked extremely hard to support me for my studies all these years. Right now, I'm worried about how am I going to settle my study loan when my dad don't live anymore and also my living budget when my dad is not with me anymore..... :(
Please help me, your contribution is very important to me
Posted by cklow on 2010-08-13 21:58:58
Alright, now I would like to tell all of you about the problems that I'm experiencing now. I'm a ' (MS) Multiple Sclerosis ' patient now. MS is a neurological illness. It has no cure found yet at the moment. MS is a disabling illness. Every patient has a different disabling symptoms such as blindness, disability to walk and a few more. You can google it to find out more about MS.
For me, I'm having an 'intentional tremor' symptom on my hands. My hands will tremor whenever I'm trying to do something using it. For example, if I intend to write something with my hand, it will begin to tremor when I'm writing. Actually I'm a 3rd year engineering student but due to the illness that I've contracted, I could not persue my degee anymore.
I feel very sad for disappointing my dad. He has worked extremely hard to support me for my studies all these years. Right now, I'm worried about how am I going to settle my study loan when my dad don't live anymore and also my living budget when my dad is not with me anymore..... :(
please help me :(
Posted by cklow on 2010-08-12 01:58:58
I'm very happy for being able to find this site with all the good
samaritans here. I would like to thank God for the wonders of the
internet.
Alright, now I would like to tell all of you about the problems that
I'm experiencing now. I'm a ' (MS) Multiple Sclerosis ' patient now. MS
is a neurological illness. It has no cure found yet at the moment. MS
is a disabling illness. Every patient has a different disabling
symptoms such as blindness, disability to walk and a few more. You can
google it to find out more about MS.
For me, I'm having an 'intentional tremor' symptom on my hands. My
hands will tremor whenever I'm trying to do something using it. For
example, if I intend to write something with my hand, it will begin to
tremor when I'm writing. Actually I'm a 3rd year engineering student
but due to the illness that I've contracted, I could not persue my
degee anymore.
I feel very sad for disappointing my dad. He has worked extremely hard
to support me for my studies all these years. Right now, I'm worried
about how am I going to settle my study loan when my dad don't live
anymore and also my living budget when my dad is not with me
anymore..... :(
please help me :(
Posted by cklow on 2010-08-12 01:58:58
I'm very happy for being able to find this site with all the good
samaritans here. I would like to thank God for the wonders of the
internet.
Alright, now I would like to tell all of you about the problems that
I'm experiencing now. I'm a ' (MS) Multiple Sclerosis ' patient now. MS
is a neurological illness. It has no cure found yet at the moment. MS
is a disabling illness. Every patient has a different disabling
symptoms such as blindness, disability to walk and a few more. You can
google it to find out more about MS.
For me, I'm having an 'intentional tremor' symptom on my hands. My
hands will tremor whenever I'm trying to do something using it. For
example, if I intend to write something with my hand, it will begin to
tremor when I'm writing. Actually I'm a 3rd year engineering student
but due to the illness that I've contracted, I could not persue my
degee anymore.
I feel very sad for disappointing my dad. He has worked extremely hard
to support me for my studies all these years. Right now, I'm worried
about how am I going to settle my study loan when my dad don't live
anymore and also my living budget when my dad is not with me
anymore..... :(
