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Lupus Tags
Fiancee Died in arms Need help for kids!!
Posted by kdoggdatdude on 2012-05-15 02:58:55
please someone help our family
Posted by sweetc69 on 2012-05-13 21:58:24
help single mother of two
Posted by charika87 on 2012-04-29 07:58:55
Single Mom in Need of Non-Food Necessities
Posted by nicolembranham on 2012-04-18 21:58:52
My Address is:
Nicole Branham
860 Northmeadow Dr.
Gaylord, MI 49735
email: nicolembranham@aol.com
Please help me LIVE a little bit longer.
Posted by SweetLittleDoll on 2012-04-18 01:58:02
I have several cronic illnesses. Including scoliosis:Scoliosis is a sideways curvature of the spine that occurs most often during the growth spurt just before puberty. While scoliosis can be caused by conditions such as cerebral palsy and muscular dystrophy, the cause of most scoliosis is unknown. My scoliosis curve got worse, the spine rotated and twisted, in addition to curving side to side. This caused the ribs on one side of the body to stick out farther than on the other side. Severe scoliosis can caused back pain and difficulty breathing. In my case In severe scoliosis, the rib cage may press against the lungs and heart, making it more difficult to breathe and harder for the heart to pump.I also experience harsh neurological affects of Muscle weakness, Numbness and Abnormal reflexes. To save my life I had to have surgery.
Surgery involves correcting the curve (although not all the way) and fusing the bones in the curve together. The surgeon lays bone grafts across the exposed surface of each vertebra. These grafts will regenerate, grow into the bone, and fuse the vertebrae together. The bones are held in place with one or two metal rods held down with hooks and screws, helping to support the fusion of the vertebrae.I went through all this at age 13. But now with the onset of sevral more cronic illness complication from the surgery that once saved my life now slowly kill me.
Years later I began getting sicker and sicker by the time I was 20 my spine was degenerating causing horrible pain, I had to have my appendix removed, then gallblader went bad. We never dreamed these all had a common factor. Doctors just shook their head proclaiming :you are just so young for your body to be failing like this". Eventually it was discovered I have Lupus and severe arthritus. Lupus is an autoimmune disease, meaning that the body' s immune system mistakenly attacks healthy organs and tissue. Lupus can affect any part of the body, causing inflammation and damage in joints, skin, kidneys, heart, lungs, blood vessels, or the brain. More than 90% of people with lupus have skin rashes, often triggered by exposure to the sun, and about half have kidney and lung problems. Because lupus affects the joints, it is considered a rheumatic (arthritis) disease.
Upon this discovery things began to make sense. So doctors now knowing why began a body wide check up to see what all has been affected. One test was A bone mineral density (BMD) test measures how much calcium and other types of minerals are present in a section of your bone. Your health care provider uses this test, along with other risk factors, to predict your risk of bone fractures in the future and detect osteoporosis. Bone fracture risk is highest in people with osteoporosis. They found I indeed had osteoporosis at the age of 22. SO now My bones are weaking causing damage areas all over my body, but the most serious being in my spine. Now comes the arthritis/lupus, they see these damaged areas and my own imune system attacks. Eating at the damaged areas creating even more damage, which increases the area the lupus attacks. It is a vicious circle. I have now been treated with medication over 10 yrs. But they can only slow the illness there is no cure, and dure to my scoliosis and the metal rods in my back surgical treatment options are very limited.
The damage is so severe I was decared legally disabled by the age of 23. My only income is SSI. I have to support my children and I on 658.00 a month. Thank God the court issued my ex to pay my rent in lue of child support. I am asking for help to cover upcoming medical bills. In the last 14 months I have had 5 seperate kidney surgery. My right kidney is damaged and I will soon be having a 6th surgery. This one to remove damaged section of the tube that leads from the kidney to bladder. then they will reattach at a higher section of bladder. I will aslo be having several Jaw surgeries. Due to exposure to radiation, osteoperosis a excessive vomiting of stomache acid my teeth are breaking and falling out. The doctor needs to repair what they can and put in inplants for what they cant. This will slow the degineration of my jaw. Without this treatment my jaw is going to cave in. Currently I am only able to eat mushy foods. I have drastically lost weight and my body is stuggling to heal due to the stress, pain and infection. So I hunbly beg of you to help me 1.00 or 50.00 anything would help. These procedures will not only improve my quality of life but aslo help extend my time here on earth just a little ehile longer. I just want to be with my kids as long as I can.Whith each dollar you donate its like adding an hour to my life.....What would you give for a few more hours with the ones you love?
Please help me LIVE a little bit longer.
Posted by SweetLittleDoll on 2012-04-18 01:58:01
I have several cronic illnesses. Including scoliosis:Scoliosis is a sideways curvature of the spine that occurs most often during the growth spurt just before puberty. While scoliosis can be caused by conditions such as cerebral palsy and muscular dystrophy, the cause of most scoliosis is unknown. My scoliosis curve got worse, the spine rotated and twisted, in addition to curving side to side. This caused the ribs on one side of the body to stick out farther than on the other side. Severe scoliosis can caused back pain and difficulty breathing. In my case In severe scoliosis, the rib cage may press against the lungs and heart, making it more difficult to breathe and harder for the heart to pump.I also experience harsh neurological affects of Muscle weakness, Numbness and Abnormal reflexes. To save my life I had to have surgery.
Surgery involves correcting the curve (although not all the way) and fusing the bones in the curve together. The surgeon lays bone grafts across the exposed surface of each vertebra. These grafts will regenerate, grow into the bone, and fuse the vertebrae together. The bones are held in place with one or two metal rods held down with hooks and screws, helping to support the fusion of the vertebrae.I went through all this at age 13. But now with the onset of sevral more cronic illness complication from the surgery that once saved my life now slowly kill me.
Years later I began getting sicker and sicker by the time I was 20 my spine was degenerating causing horrible pain, I had to have my appendix removed, then gallblader went bad. We never dreamed these all had a common factor. Doctors just shook their head proclaiming :you are just so young for your body to be failing like this". Eventually it was discovered I have Lupus and severe arthritus. Lupus is an autoimmune disease, meaning that the body' s immune system mistakenly attacks healthy organs and tissue. Lupus can affect any part of the body, causing inflammation and damage in joints, skin, kidneys, heart, lungs, blood vessels, or the brain. More than 90% of people with lupus have skin rashes, often triggered by exposure to the sun, and about half have kidney and lung problems. Because lupus affects the joints, it is considered a rheumatic (arthritis) disease.
Upon this discovery things began to make sense. So doctors now knowing why began a body wide check up to see what all has been affected. One test was A bone mineral density (BMD) test measures how much calcium and other types of minerals are present in a section of your bone. Your health care provider uses this test, along with other risk factors, to predict your risk of bone fractures in the future and detect osteoporosis. Bone fracture risk is highest in people with osteoporosis. They found I indeed had osteoporosis at the age of 22. SO now My bones are weaking causing damage areas all over my body, but the most serious being in my spine. Now comes the arthritis/lupus, they see these damaged areas and my own imune system attacks. Eating at the damaged areas creating even more damage, which increases the area the lupus attacks. It is a vicious circle. I have now been treated with medication over 10 yrs. But they can only slow the illness there is no cure, and dure to my scoliosis and the metal rods in my back surgical treatment options are very limited.
The damage is so severe I was decared legally disabled by the age of 23. My only income is SSI. I have to support my children and I on 658.00 a month. Thank God the court issued my ex to pay my rent in lue of child support. I am asking for help to cover upcoming medical bills. In the last 14 months I have had 5 seperate kidney surgery. My right kidney is damaged and I will soon be having a 6th surgery. This one to remove damaged section of the tube that leads from the kidney to bladder. then they will reattach at a higher section of bladder. I will aslo be having several Jaw surgeries. Due to exposure to radiation, osteoperosis a excessive vomiting of stomache acid my teeth are breaking and falling out. The doctor needs to repair what they can and put in inplants for what they cant. This will slow the degineration of my jaw. Without this treatment my jaw is going to cave in. Currently I am only able to eat mushy foods. I have drastically lost weight and my body is stuggling to heal due to the stress, pain and infection. So I hunbly beg of you to help me 1.00 or 50.00 anything would help. These procedures will not only improve my quality of life but aslo help extend my time here on earth just a little ehile longer. I just want to be with my kids as long as I can.Whith each dollar you donate its like adding an hour to my life.....What would you give for a few more hours with the ones you love?
Lupus has destroyed me financially
Posted by Mommyof6 on 2012-03-28 23:58:55
Please help
Posted by Dugchar5 on 2012-03-21 03:58:26
Without hope
Posted by mycologyluvr on 2012-01-12 20:58:06
Please read my true story i matter too...
Posted by AngelaB on 2012-01-01 15:58:41
My name is Angela K. Baker. I live in Green Bay, Wisconsin and have been living with diagnosis of Systemic Lupus since I was fourteen years (I am now 34 DOB 06/16/1977). Although as a child, I knew there was something a little different about myself compared to my twin brother Johnathan. I could never run and play with the other children because my body just would not keep up with the other kids. It always felt like I had sandbags attached to me and I would pass out in the sunlight, I was always exhausted and my body cried out in pain. I just didn't know why. I can remember being like this all the way back to my kindergarten year. Not that my parents were bad people, it just seemed like they just didn't have anymore to give, there problems were so on the surface, (both of my parents are alcoholics, and my mother has had Multiple Sclerosis (MS) since I was born and as for my father, he spent a large part of my life locked away in the Wisconsin jail system (due to his own alcohol induced indescretions.) At fourteen I got a full-time job to pay for my medical bills and a part-time job working at a nursing home to help my family. I have always been stuborn and a fighter, but at this point in my life the fight has just about been exstinguished out of me and I have to admit that I need some help. Over the last twenty years I have been under anasthetic approximately 125 times. I am missing more parts than I have. I feel like an experiment gone wrong or a human pin coushon. I hope that at least some of my surgical suffering at least helped the surgeons learn something from my body...You see I have lived longer than anyone that they know of with this kind of Lupus. It usually manifesters in the late 30's or 40's not in children. My most recent operation was on June 9th 2011, to fix holes in my intestines that were accidentley left after my colon was removed (my colon exploded after it had been recected four times) Right now I have an Illyectomy system that does not work correctly, it leaks blood, bile, puss, fecal liquid ect. and the plastic appliances do not work on me because my skin is so sensative from the Lupus. My medical exspenses are so astronomical even with Medicare and I struggle every month to pay my basic needs (rent, public service water copays ect) I was forced to retire at 23 my body deceided it just couldn't do it anymore, even though I worked very hard to put myself through college so that I could have a decent job that I enjoyed. Thank God that it does not take much to feed me, because the state of WI says that I do not qualify for food stamps or medical assistance, I make $4.oo a month too much. I am not asking for large donations, I know the ecomomy is bad and we are all struggling. What I am asking that when you balance your checking account that you round up to the nearest dollar and please donate the change. My goal is to collect enough money to see a special surgeon at Freodert Hospital in Milwaukee Wisconsin. He would like to see if he can help me have some kind of quality of life and end some of the suffering that I have been enduring for a long time . I would be happy if I even received a little relief. I don't remember what it is like to feel healthy, everyone in this life deserves at least a shot at it... If I am given the help that I need, I fully intend to open my home again as a safe house ( I am not able to do that now because of the leaking illeostmy ) and I would love to a foster mom to any child who needs a good loving and stable home. The way I am right now is horrible ( I have not left my home in over six months excluding doctor appointments) I do realize that some people use these sites for frivilous things and for scamming people. All that that I can do is to give my word that I promise to pay it forward. In my life I have been through an extraordinary amount of human suffering and it is a miracle that I am alive still to tell my story, and for that I am truly greatful and I am here still for a reason. It is not so bad to live without certain basic human needs, it's the having too that is very heartbreaking.
Sincerely,
Angela K. Baker
Please read my true story i matter too...
Posted by AngelaB on 2012-01-01 15:58:38
My name is Angela K. Baker. I live in Green Bay, Wisconsin and have been living with diagnosis of Systemic Lupus since I was fourteen years (I am now 34 DOB 06/16/1977). Although as a child, I knew there was something a little different about myself compared to my twin brother Johnathan. I could never run and play with the other children because my body just would not keep up with the other kids. It always felt like I had sandbags attached to me and I would pass out in the sunlight, I was always exhausted and my body cried out in pain. I just didn't know why. I can remember being like this all the way back to my kindergarten year. Not that my parents were bad people, it just seemed like they just didn't have anymore to give, there problems were so on the surface, (both of my parents are alcoholics, and my mother has had Multiple Sclerosis (MS) since I was born and as for my father, he spent a large part of my life locked away in the Wisconsin jail system (due to his own alcohol induced indescretions.) At fourteen I got a full-time job to pay for my medical bills and a part-time job working at a nursing home to help my family. I have always been stuborn and a fighter, but at this point in my life the fight has just about been exstinguished out of me and I have to admit that I need some help. Over the last twenty years I have been under anasthetic approximately 125 times. I am missing more parts than I have. I feel like an experiment gone wrong or a human pin coushon. I hope that at least some of my surgical suffering at least helped the surgeons learn something from my body...You see I have lived longer than anyone that they know of with this kind of Lupus. It usually manifesters in the late 30's or 40's not in children. My most recent operation was on June 9th 2011, to fix holes in my intestines that were accidentley left after my colon was removed (my colon exploded after it had been recected four times) Right now I have an Illyectomy system that does not work correctly, it leaks blood, bile, puss, fecal liquid ect. and the plastic appliances do not work on me because my skin is so sensative from the Lupus. My medical exspenses are so astronomical even with Medicare and I struggle every month to pay my basic needs (rent, public service water copays ect) I was forced to retire at 23 my body deceided it just couldn't do it anymore, even though I worked very hard to put myself through college so that I could have a decent job that I enjoyed. Thank God that it does not take much to feed me, because the state of WI says that I do not qualify for food stamps or medical assistance, I make $4.oo a month too much. I am not asking for large donations, I know the ecomomy is bad and we are all struggling. What I am asking that when you balance your checking account that you round up to the nearest dollar and please donate the change. My goal is to collect enough money to see a special surgeon at Freodert Hospital in Milwaukee Wisconsin. He would like to see if he can help me have some kind of quality of life and end some of the suffering that I have been enduring for a long time . I would be happy if I even received a little relief. I don't remember what it is like to feel healthy, everyone in this life deserves at least a shot at it... If I am given the help that I need, I fully intend to open my home again as a safe house ( I am not able to do that now because of the leaking illeostmy ) and I would love to a foster mom to any child who needs a good loving and stable home. The way I am right now is horrible ( I have not left my home in over six months excluding doctor appointments) I do realize that some people use these sites for frivilous things and for scamming people. All that that I can do is to give my word that I promise to pay it forward. In my life I have been through an extraordinary amount of human suffering and it is a miracle that I am alive still to tell my story, and for that I am truly greatful and I am here still for a reason. It is not so bad to live without certain basic human needs, it's the having too that is very heartbreaking.
Sincerely,
Angela K. Baker
Please read my true story i matter too...
Posted by AngelaB on 2011-12-22 16:58:40
My name is Angela K. Baker. I live in Green Bay, Wisconsin and have been living with diagnosis of Systemic Lupus since I was fourteen years (I am now 34 DOB 06/16/1977). Although as a child, I knew there was something a little different about myself compared to my twin brother Johnathan. I could never run and play with the other children because my body just would not keep up with the other kids. It always felt like I had sandbags attached to me and I would pass out in the sunlight, I was always exhausted and my body cried out in pain. I just didn't know why. I can remember being like this all the way back to my kindergarten year. Not that my parents were bad people, it just seemed like they just didn't have anymore to give, there problems were so on the surface, (both of my parents are alcoholics, and my mother has had Multiple Sclerosis (MS) since I was born and as for my father, he spent a large part of my life locked away in the Wisconsin jail system (due to his own alcohol induced indescretions.) At fourteen I got a full-time job to pay for my medical bills and a part-time job working at a nursing home to help my family. I have always been stuborn and a fighter, but at this point in my life the fight has just about been exstinguished out of me and I have to admit that I need some help. Over the last twenty years I have been under anasthetic approximately 125 times. I am missing more parts than I have. I feel like an experiment gone wrong or a human pin coushon. I hope that at least some of my surgical suffering at least helped the surgeons learn something from my body...You see I have lived longer than anyone that they know of with this kind of Lupus. It usually manifesters in the late 30's or 40's not in children. My most recent operation was on June 9th 2011, to fix holes in my intestines that were accidentley left after my colon was removed (my colon exploded after it had been recected four times) Right now I have an Illyectomy system that does not work correctly, it leaks blood, bile, puss, fecal liquid ect. and the plastic appliances do not work on me because my skin is so sensative from the Lupus. My medical exspenses are so astronomical even with Medicare and I struggle every month to pay my basic needs (rent, public service water copays ect) I was forced to retire at 23 my body deceided it just couldn't do it anymore, even though I worked very hard to put myself through college so that I could have a decent job that I enjoyed. Thank God that it does not take much to feed me, because the state of WI says that I do not qualify for food stamps or medical assistance, I make $4.oo a month too much. I am not asking for large donations, I know the ecomomy is bad and we are all struggling. What I am asking that when you balance your checking account that you round up to the nearest dollar and please donate the change. My goal is to collect enough money to see a special surgeon at Freodert Hospital in Milwaukee Wisconsin. He would like to see if he can help me have some kind of quality of life and end some of the suffering that I have been enduring for a long time . I would be happy if I even received a little relief. I don't remember what it is like to feel healthy, everyone in this life deserves at least a shot at it... If I am given the help that I need, I fully intend to open my home again as a safe house ( I am not able to do that now because of the leaking illeostmy ) and I would love to a foster mom to any child who needs a good loving and stable home. The way I am right now is horrible ( I have not left my home in over six months excluding doctor appointments) I do realize that some people use these sites for frivilous things and for scamming people. All that that I can do is to give my word that I promise to pay it forward. In my life I have been through an extraordinary amount of human suffering and it is a miracle that I am alive still to tell my story, and for that I am truly greatful and I am here still for a reason. It is not so bad to live without certain basic human needs, it's the having too that is very heartbreaking.
Sincerely,
Angela K. Baker
My wife and I need help - please.
Posted by LupusInNeed on 2011-12-16 12:58:49
I have tried for several months to land a job-any job, but with no luck. I am a published author and an historian with a background in archaeology and geology. My wife and I try to lead normal, quiet lives the best we can with her condition. I suffer from epilepsy and as a result I cannot work a night-shift as this will trigger myoclonic seizures.
My wife and I daily make sales on Amazon and eBay and I have been published several times in national publications and have given oral history presentations.
I am trying the best I can in this tempestuous economy to create a healthy, stable home for my wife. However, with the looming threat of limited income and no insurance I can only do so much. I have attempted to create a book dealer business through eBay and Amazon and this has generated some income to supplement my writing income, but this is not enough to support my sick wife.
We try to stay active and engender a healthy lifestyle to encourage her recovery. I am still seeking employment, but as many of you know it is a tough battle. I love my wife very much and am thankful for the care and help she has received thus far. However, I cannot do this alone.
Anything you can do to help is appreciated. We will pay this forward.
Thank you.
Dental problems
Posted by Kee26 on 2011-11-17 16:58:18
Plz help
Posted by LadyFlame on 2011-10-07 16:58:41
Help for single Mother with Lupus.
Posted by helper4 on 2011-08-24 22:58:18
I HATE TO ASK BUT I NEED HELP
Posted by lizzy4444 on 2011-07-22 21:58:38
Help
Posted by jpgomg on 2011-06-22 19:58:25
really need help with this months rent so we dont lose our home
Posted by mommyofthreekidz on 2011-06-07 09:58:38
Young lady needing a little help
Posted by Simmone34 on 2011-05-19 17:58:33
Thank u GOD BLESS
Need help to pay my bills ...
Posted by sunshinenroses0 on 2011-05-16 16:58:30
Disabled Grandmother Raising Special Needs Child please help
Posted by cantbelieveimdoingthis on 2011-04-18 11:58:45
Need Financial Help
Posted by suebee1957 on 2011-02-17 22:58:59
Disabled 37 yr old mom,Fighting for my life
Posted by tkmcguire1 on 2010-11-17 04:58:58
Suffering from End Stage Renal Failure Asking for Medical Assistance
Posted by heavenknows on 2010-10-22 10:58:58
I'm suffering for almost 4 years now, and we, together with my family are already out of funds and bankrupt due to extensive medical treatments and maintenance. I rely to friends and relatives who in one way or another support me but not long-term.
I have a strong faith in God and have been praying for some answers to my circumstances. If you could find it in your heart to help me, I would greatly appreciate it. Any amount will do that would help ease our current pressing financial need and the rest will go toward relieving our overall debt and start the savings needed for the medical treatment that will save my life and offer our entire family a new life.
Please help.
