Hd Tags

I am writing on behalf of my 38 year old niece, who was recently diagnosed with Huntington’s disease (HD) and cannot submit this request without assistance. For those of you who are unfamiliar with HD, briefly, it is a fatal, autosomal-dominant neurological illness causing involuntary movements, debilitating emotional disturbance and cognitive decline.
In most instances, when you hear of someone being diagnosed with HD, it’s more like being handed a death sentence. This is due to the fact that there is no known cure and for many, the course of their illness for the rest of their lives is outright terrifying. Care and treatment for HD is extremely costly, and can be arduous, rigorous and intense, and therefore persons with this illness are usually placed in residential care and treatment facilities to live out their days.

My niece has chosen to live a full and meaningful life with HD and through the Grace of God, and all who step up to support her in this effort. She is currently residing on her own, and has shown amazing courage, strength and unique humor each and every step of the way. Most recently she mentioned to me in a telephone conversation that she saw a televised showing of a young girls wish being granted by the Make a Wish Foundation, and how she could use them to get a midsized sofa bed for herself, which she currently needs for her studio apartment.

After an exhaustive internet search for sites that grant adult wishes, I came upon this site and am formally submitting this request to you for your consideration. There is a Big Lots in the area where my niece resides which has a sofa bed for $400. If you are in a position to donate some or all of the funds towards this purchase please feel free to do so. If you find yourself in a position to purchase the sofa sleeper and have it delivered to her, this too is welcomed. Either way, contact us so we can make arrangements.

And if you’re feeling despondent because you have no money to contribute, you can assist us in this way. We’ve had tremendous success so far this year in garnering support for the Huntington’s Disease Parity Act, which would make it easier for people with HD to receive Social Security Disability and Medicare benefits. Prior to the onset of HD, my niece and most other adults affected with this disease were tax paying citizens like you and I. We are up to 83 cosponsors of H.R. 718 in the House and 6 cosponsors of S. 648 in the Senate, and we need YOUR help to get Rep. Grace F. Napolitano on board. You can do so by writing to her as well as your own congresspersons to support these bills.

Thank you for your consideration and effort.

Hello my name is Rachel and I have a dream. My dream is to record my outdoor hikes and edit them into videos that will be posted to Youtube to be viewed by those who might be house bound or not able to walk the trails. My ultimate goal is to record my family walking the Pacific Crest Trail in 2019 in full from Mexico to Canada. In the meantime we are training on local trails and will record them for public enjoyment.

The Gear I need:
- Macintosh Laptop
- Video Editing Software
- 4 GoPro HD Cameras and harness for chest and head mounts, storage and extra batteries
- external hard drive
- hiking gear for a family of four

Thank you for considering this cause. I hope we can make this dream happening. As an out of work teacher here in California I am hoping to bring my passion for learning and the outdoors to the people of the net.

Thank you for you time and support! If you donate I will make sure to send you my youtube channel information so you can track my progress.

Much love!