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I am asking for new carseats
Posted by catsy101 on 2012-05-01 20:58:19
Help Us Start Over
Posted by openyourheart4me on 2012-04-14 13:58:58
Help Us Start Over
Posted by openyourheart4me on 2012-04-14 13:58:55
A family in turmoil.
Posted by elbeecee on 2012-04-06 04:58:09
It wasn't long before she became gravely ill. In the summer of 2010 my mother had succumbed to kidney failure and had to be on kidney dialysis permanently. She had neglected to take care of herself while trying to take care of my father and their financial woes. Along with the financial woes, there were back taxes that were still owed and of course were impossible to pay, their house was falling apart--still is. By the end of Spring 2011, my mother got so ill and was on a ventilator at least 4 times in a 2 week period due to her lungs filling up with fluid. Finally it was discovered that she had endocarditis (infection in heart)that had ravaged one of her heart valves. This required open heart surgery and replacement of the defected valve. The endocarditis stemmed from an infected temporary dialysis catheter. She was in the hospital for over a month and a half or so. Needless to say she was confused, lost tons of weight, and lost the ability to walk or care for herself. She was placed in a nursing home for rehab, but several more stays in the hospital only made her fall several steps back on her rehab and she never has fully recovered. It was discovered that she also had a tumor on one of her kidneys and her kidney was removed in the Fall of 2011 and supposedly it was all contained and it was early stage renal (kidney) carcinoma (cancer). While my mother was in the hospital my father had trouble breathing and I took him to the hospital. It as discovered he was in kidney failure and they both ended up in the hospital at the same time. Now my father is on permanent kidney dialysis.
Now fast forward to present day April 6, 2012. My mother's dialysis shunt would not stop bleeding and she was taken to the emergency room. She also complained of right leg pain and ultimately she ended up with a CT angiogram. This test revealed she not only had some blockage in one of her arteries in her leg, but that she had metastatic cancer to her liver, lungs, and a site near her spleen. Of course we are devastated.
They have no money. The money they do get is always depleted as soon as they get it from Medicare. My mother's social security check went straight to the nursing home and still was not enough to cover her bill. My father would have to pay over $1,000 a month because Medicare would only pay for several weeks. Since she has been in the hospital now for almost 2 weeks, we have pulled her out of the nursing home because the expected us to pay over $180 A DAY to keep her spot at the nursing home.
Now we are faced with a surgery to fix her leg, a plan for cancer treatment, and no suitable place for my mother to live. Their current home is in shambles and I mean SHAMBLES. Roof leaks and is falling apart. I assume there is some black mold lingering. No central air or heat as their units are broke. Plus large amounts of stuff--my mother also was a hoarder. The house is disgusting and it has been hard to clean up with out major assistance and with constant trips to the hospital who has ample time (?). They live in a small town and it is very hard to simply get a dumpster to throw many items away. The house would have to be completely gutted and redone. The floors are sinking in and it is very dangerous. They don't have the funds to fix any of it and nor do I.
I have missed work several times over the last year and more with FMLA, but never have enough PTO to fully cover my own losses.
My siblings have yet to start their lives. They have been with my parents ever since 2007 to help them with everything. Even when my mother was in a nursing home my siblings and my dad would go see my mom every single day--we just didn't trust the care of the nursing home and rightly so because she developed a bed ulcer on her heel after the wound care nurse said it was getting better--not even close! And yes the blocked artery in her leg and her bed ulcer on her heel are related. The wound care nurse and the Dr. for the nursing home should have caught this medical issue.
So life has been tough, but reading about it doesn't even give it justice. We need financial assistance, a new home or help to fix it--we need a lot of help. I want my brother and sister to finally get on their own feet and do what they want to do. I feel bad for them because I was able to finish college and have a career, a husband, and a home. They have yet to accomplish their goals and it makes me sad and sick to see them so depressed. They are in their late 20s and my parents are both 65 y.o.
If anyone has a kind heart, I promise you I'm not lying. I have proof of all I have written about and I swear on everything--my family, my husband, etc. that this is all real. Thank you for your time and interest. If you can't help at least please pray for us.
I'm trying this BegsList as desperation as I don't know what to do. My wish is to get them a nice clean place to live and live their last years worry free.
Please help me save my mother !
Posted by Sunshine93 on 2012-02-27 09:58:28
Please help me save my mother !
Posted by Sunshine93 on 2012-02-27 09:58:27
LOAN OFFER
Posted by mrsmerryjames on 2012-02-22 12:58:07
Are you a business man or woman? Are you in any financial mess or do you need funds to start up your own business? Do you need loan to settle your debt or pay off your bills or start a nice business? Do you have a low credit score and you are finding it hard to obtain capital loan from local banks and other financial institutes? Do you need a loan or funding for any reason such as:
a) Personal Loan
b) Business Start-up
c) Debt Consolidation
d) Hard Money Loans
e) Business Expansion
f) Education E.t.c
We offer loan at 5% interest rate and with no credit check, we offer Personal loans, debt consolidation loans, venture capital, business loans, education loans, home loans or "loans for any reasonâ. However, our method, offers you the chance to state the amount of loan needed and also the duration you can afford. This gives you a real chance to get the funds you need! Any interested Applicants should get back to me via any of the e-mail addresses below:
(realdealzloancompany@rocketmail.com)
or
(realdealloancompany@gmail.com)
Kind regard,
Mrs. Merry James
Managing Director
Real Dealz Loan Company Ltd
© 2012 Microsoft Windows Reserved
I got your contact from a web directory.
---------------------------------------------------------------------------------------------------------------------------------------------------------------------------
This message has been scanned for viruses and dangerous content by the SmallWorld MailScanner, and is believed to be clean.
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LOAN OFFER
Posted by mrsmerryjames on 2012-02-22 08:58:49
Are you a business man or woman? Are you in any financial mess or do you need funds to start up your own business? Do you need loan to settle your debt or pay off your bills or start a nice business? Do you have a low credit score and you are finding it hard to obtain capital loan from local banks and other financial institutes? Do you need a loan or funding for any reason such as:
a) Personal Loan
b) Business Start-up
c) Debt Consolidation
d) Hard Money Loans
e) Business Expansion
f) Education E.t.c
We offer loan at 5% interest rate and with no credit check, we offer Personal loans, debt consolidation loans, venture capital, business loans, education loans, home loans or "loans for any reasonâ. However, our method, offers you the chance to state the amount of loan needed and also the duration you can afford. This gives you a real chance to get the funds you need! Any interested Applicants should get back to me via any of the e-mail addresses below:
(realdealzloancompany@rocketmail.com)
or
(realdealloancompany@gmail.com)
Kind regard,
Mrs. Merry James
Managing Director
Real Dealz Loan Company Ltd
© 2012 Microsoft Windows Reserved
---------------------------------------------------------------------------------------------------------------------------------------------------------------------------
This message has been scanned for viruses and dangerous content by the SmallWorld MailScanner, and is believed to be clean.
---------------------------------------------------------------------------------------------------------------------------------------------------------------------------
Debt
Posted by Passion on 2012-02-21 23:58:31
Need Financial Help to Maintain Decent Quality of Living-Tired of Being Raped and Abused in the South
Posted by spyyder976 on 2012-02-06 15:58:17
Need Financial Help to Maintain Decent Quality of Living-Tired of Being Raped and Abused in the South
Posted by spyyder976 on 2012-02-06 15:58:17
Need Financial Help to Maintain Decent Quality of Living-Tired of Being Raped and Abused in the South
Posted by spyyder976 on 2012-02-06 15:58:16
Need Financial Help to Maintain Decent Quality of Living-Tired of Being Raped and Abused in the South
Posted by spyyder976 on 2012-02-06 15:58:16
Need Financial Help to Maintain Decent Quality of Living-Tired of Being Raped and Abused in the South
Posted by spyyder976 on 2012-02-06 15:58:15
Need Financial Help to Maintain Decent Quality of Living-Tired of Being Raped and Abused in the South
Posted by spyyder976 on 2012-02-06 15:58:15
Need Financial Help to Maintain Decent Quality of Living-Tired of Being Raped and Abused in the South
Posted by spyyder976 on 2012-02-06 15:58:05
My only dream - Funding IVF/Surrogate
Posted by SweetPea on 2012-01-24 05:58:27
im a 23 year old woman, married with a mortgage and a full time poorly paid job. i wouldnt do this unless i was absoultly desperate but please here my story.
ive got a special body - i was born with two uteruses and two ovaries. *great your thinking, theres no reason why she cant get pregnant*. unfortunatly i wish that was the case. each ovary is only connected to one womb. only one of my wombs has a passage for "sailors" to do their job. i also have polycystic ovaries (which means i dont ovulate without ibtervention from medication* i was told from being a teenager it would be diffuclt/ dangerous to get pregnant.
on top of that i was also born with severe kidney failure, I only have 1 working kidney and the other one is really tiny with cysts on it. My doctors estimate i will be on dialisis within 10 years if my kidney continues to fail as fast have they have. My kidney function is currently only working at 25%.
i have diabetes type 1 (insulin) and I was also born with a hereditary bones disorder called, Multipul Ephiseal Displasure. i know what your thinking, *theres no way this girl is being serious* well believe me, if could take anyone of these away i would in a heartbeat.
now despite all of this, after 3 years of trying to get pregnant i succeeded dispite what the doctors said. unfortunatly this ended in miscarriage due to my health problems. my world broke, i was depressed for months because my special sweetpea my only dream, had been taken away from me in the most horrific way imaginable.
this was 3 years ago - we still havent been caught pregnant again (bearing in mind sweetpea was nigh on a miracle). we have tried numerous methods and advice and intervention from doctors. doctors are now advising it wouldnt be safe to get pregnant again as the chanes of miscarrage are high and i would more than likely be on dialisys as pregnancy takes it toll on your whole body.. ie kidneys.
im still heartbroken after losing my little miracle and we are now looking to fund 1 round of IVF in a surrogate mum. please help me with our dream. We need roughly £5000.00 to fund the bills and without your help, it would take us roughly 10-15 years to save that amount of money up. we are desen, honest, hardworking people who are doing anything to make their dream a relaity again.
please donate.
much love and baby dust
xxxx
My only dream - Funding IVF/Surrogate
Posted by SweetPea on 2012-01-24 05:58:27
im a 23 year old woman, married with a mortgage and a full time poorly paid job. i wouldnt do this unless i was absoultly desperate but please here my story.
ive got a special body - i was born with two uteruses and two ovaries. *great your thinking, theres no reason why she cant get pregnant*. unfortunatly i wish that was the case. each ovary is only connected to one womb. only one of my wombs has a passage for "sailors" to do their job. i also have polycystic ovaries (which means i dont ovulate without ibtervention from medication* i was told from being a teenager it would be diffuclt/ dangerous to get pregnant.
on top of that i was also born with severe kidney failure, I only have 1 working kidney and the other one is really tiny with cysts on it. My doctors estimate i will be on dialisis within 10 years if my kidney continues to fail as fast have they have. My kidney function is currently only working at 25%.
i have diabetes type 1 (insulin) and I was also born with a hereditary bones disorder called, Multipul Ephiseal Displasure. i know what your thinking, *theres no way this girl is being serious* well believe me, if could take anyone of these away i would in a heartbeat.
now despite all of this, after 3 years of trying to get pregnant i succeeded dispite what the doctors said. unfortunatly this ended in miscarriage due to my health problems. my world broke, i was depressed for months because my special sweetpea my only dream, had been taken away from me in the most horrific way imaginable.
this was 3 years ago - we still havent been caught pregnant again (bearing in mind sweetpea was nigh on a miracle). we have tried numerous methods and advice and intervention from doctors. doctors are now advising it wouldnt be safe to get pregnant again as the chanes of miscarrage are high and i would more than likely be on dialisys as pregnancy takes it toll on your whole body.. ie kidneys.
im still heartbroken after losing my little miracle and we are now looking to fund 1 round of IVF in a surrogate mum. please help me with our dream. We need roughly £5000.00 to fund the bills and without your help, it would take us roughly 10-15 years to save that amount of money up. we are desen, honest, hardworking people who are doing anything to make their dream a relaity again.
please donate.
much love and baby dust
xxxx
My only dream - Funding IVF/Surrogate
Posted by SweetPea on 2012-01-24 05:58:27
im a 23 year old woman, married with a mortgage and a full time poorly paid job. i wouldnt do this unless i was absoultly desperate but please here my story.
ive got a special body - i was born with two uteruses and two ovaries. *great your thinking, theres no reason why she cant get pregnant*. unfortunatly i wish that was the case. each ovary is only connected to one womb. only one of my wombs has a passage for "sailors" to do their job. i also have polycystic ovaries (which means i dont ovulate without ibtervention from medication* i was told from being a teenager it would be diffuclt/ dangerous to get pregnant.
on top of that i was also born with severe kidney failure, I only have 1 working kidney and the other one is really tiny with cysts on it. My doctors estimate i will be on dialisis within 10 years if my kidney continues to fail as fast have they have. My kidney function is currently only working at 25%.
i have diabetes type 1 (insulin) and I was also born with a hereditary bones disorder called, Multipul Ephiseal Displasure. i know what your thinking, *theres no way this girl is being serious* well believe me, if could take anyone of these away i would in a heartbeat.
now despite all of this, after 3 years of trying to get pregnant i succeeded dispite what the doctors said. unfortunatly this ended in miscarriage due to my health problems. my world broke, i was depressed for months because my special sweetpea my only dream, had been taken away from me in the most horrific way imaginable.
this was 3 years ago - we still havent been caught pregnant again (bearing in mind sweetpea was nigh on a miracle). we have tried numerous methods and advice and intervention from doctors. doctors are now advising it wouldnt be safe to get pregnant again as the chanes of miscarrage are high and i would more than likely be on dialisys as pregnancy takes it toll on your whole body.. ie kidneys.
im still heartbroken after losing my little miracle and we are now looking to fund 1 round of IVF in a surrogate mum. please help me with our dream. We need roughly £5000.00 to fund the bills and without your help, it would take us roughly 10-15 years to save that amount of money up. we are desen, honest, hardworking people who are doing anything to make their dream a relaity again.
please donate.
much love and baby dust
xxxx
My only dream - Funding IVF/Surrogate
Posted by SweetPea on 2012-01-24 05:58:26
im a 23 year old woman, married with a mortgage and a full time poorly paid job. i wouldnt do this unless i was absoultly desperate but please here my story.
ive got a special body - i was born with two uteruses and two ovaries. *great your thinking, theres no reason why she cant get pregnant*. unfortunatly i wish that was the case. each ovary is only connected to one womb. only one of my wombs has a passage for "sailors" to do their job. i also have polycystic ovaries (which means i dont ovulate without ibtervention from medication* i was told from being a teenager it would be diffuclt/ dangerous to get pregnant.
on top of that i was also born with severe kidney failure, I only have 1 working kidney and the other one is really tiny with cysts on it. My doctors estimate i will be on dialisis within 10 years if my kidney continues to fail as fast have they have. My kidney function is currently only working at 25%.
i have diabetes type 1 (insulin) and I was also born with a hereditary bones disorder called, Multipul Ephiseal Displasure. i know what your thinking, *theres no way this girl is being serious* well believe me, if could take anyone of these away i would in a heartbeat.
now despite all of this, after 3 years of trying to get pregnant i succeeded dispite what the doctors said. unfortunatly this ended in miscarriage due to my health problems. my world broke, i was depressed for months because my special sweetpea my only dream, had been taken away from me in the most horrific way imaginable.
this was 3 years ago - we still havent been caught pregnant again (bearing in mind sweetpea was nigh on a miracle). we have tried numerous methods and advice and intervention from doctors. doctors are now advising it wouldnt be safe to get pregnant again as the chanes of miscarrage are high and i would more than likely be on dialisys as pregnancy takes it toll on your whole body.. ie kidneys.
im still heartbroken after losing my little miracle and we are now looking to fund 1 round of IVF in a surrogate mum. please help me with our dream. We need roughly £5000.00 to fund the bills and without your help, it would take us roughly 10-15 years to save that amount of money up. we are desen, honest, hardworking people who are doing anything to make their dream a relaity again.
please donate.
much love and baby dust
xxxx
My only dream - Funding IVF/Surrogate
Posted by SweetPea on 2012-01-24 05:58:26
im a 23 year old woman, married with a mortgage and a full time poorly paid job. i wouldnt do this unless i was absoultly desperate but please here my story.
ive got a special body - i was born with two uteruses and two ovaries. *great your thinking, theres no reason why she cant get pregnant*. unfortunatly i wish that was the case. each ovary is only connected to one womb. only one of my wombs has a passage for "sailors" to do their job. i also have polycystic ovaries (which means i dont ovulate without ibtervention from medication* i was told from being a teenager it would be diffuclt/ dangerous to get pregnant.
on top of that i was also born with severe kidney failure, I only have 1 working kidney and the other one is really tiny with cysts on it. My doctors estimate i will be on dialisis within 10 years if my kidney continues to fail as fast have they have. My kidney function is currently only working at 25%.
i have diabetes type 1 (insulin) and I was also born with a hereditary bones disorder called, Multipul Ephiseal Displasure. i know what your thinking, *theres no way this girl is being serious* well believe me, if could take anyone of these away i would in a heartbeat.
now despite all of this, after 3 years of trying to get pregnant i succeeded dispite what the doctors said. unfortunatly this ended in miscarriage due to my health problems. my world broke, i was depressed for months because my special sweetpea my only dream, had been taken away from me in the most horrific way imaginable.
this was 3 years ago - we still havent been caught pregnant again (bearing in mind sweetpea was nigh on a miracle). we have tried numerous methods and advice and intervention from doctors. doctors are now advising it wouldnt be safe to get pregnant again as the chanes of miscarrage are high and i would more than likely be on dialisys as pregnancy takes it toll on your whole body.. ie kidneys.
im still heartbroken after losing my little miracle and we are now looking to fund 1 round of IVF in a surrogate mum. please help me with our dream. We need roughly £5000.00 to fund the bills and without your help, it would take us roughly 10-15 years to save that amount of money up. we are desen, honest, hardworking people who are doing anything to make their dream a relaity again.
please donate.
much love and baby dust
xxxx
My only dream - Funding IVF/Surrogate
Posted by SweetPea on 2012-01-24 05:58:26
im a 23 year old woman, married with a mortgage and a full time poorly paid job. i wouldnt do this unless i was absoultly desperate but please here my story.
ive got a special body - i was born with two uteruses and two ovaries. *great your thinking, theres no reason why she cant get pregnant*. unfortunatly i wish that was the case. each ovary is only connected to one womb. only one of my wombs has a passage for "sailors" to do their job. i also have polycystic ovaries (which means i dont ovulate without ibtervention from medication* i was told from being a teenager it would be diffuclt/ dangerous to get pregnant.
on top of that i was also born with severe kidney failure, I only have 1 working kidney and the other one is really tiny with cysts on it. My doctors estimate i will be on dialisis within 10 years if my kidney continues to fail as fast have they have. My kidney function is currently only working at 25%.
i have diabetes type 1 (insulin) and I was also born with a hereditary bones disorder called, Multipul Ephiseal Displasure. i know what your thinking, *theres no way this girl is being serious* well believe me, if could take anyone of these away i would in a heartbeat.
now despite all of this, after 3 years of trying to get pregnant i succeeded dispite what the doctors said. unfortunatly this ended in miscarriage due to my health problems. my world broke, i was depressed for months because my special sweetpea my only dream, had been taken away from me in the most horrific way imaginable.
this was 3 years ago - we still havent been caught pregnant again (bearing in mind sweetpea was nigh on a miracle). we have tried numerous methods and advice and intervention from doctors. doctors are now advising it wouldnt be safe to get pregnant again as the chanes of miscarrage are high and i would more than likely be on dialisys as pregnancy takes it toll on your whole body.. ie kidneys.
im still heartbroken after losing my little miracle and we are now looking to fund 1 round of IVF in a surrogate mum. please help me with our dream. We need roughly £5000.00 to fund the bills and without your help, it would take us roughly 10-15 years to save that amount of money up. we are desen, honest, hardworking people who are doing anything to make their dream a relaity again.
please donate.
much love and baby dust
xxxx
unbreak my heart....
Posted by brokenhearted on 2012-01-20 17:58:04
I'm raising funds for ICD replacement surgery, to go see a HOCM specialist (Dr. Craig Asher) at Cleveland Clinic in S. Florida and to have advanced testing through Vanderbilt Autonomic Center in Tennessee.
I don't want to admit I need help; I've always been a strong, independent person who took care of everything and everyone. In August 2009, my whole world changed. After my procedure, I applied for disability and was turned down twice and had to hire an attorney. I went from being "super" mom, wife & friend and care taker of an Autistic son to being the one who had to be taken care of.
So how did I get to the point I have to ask others for help? Shortly before Father's Day 2009, I fell and broke my foot. When it didn't heal, I went to my primary with a broken foot and came out with a broken heart. After the shock wore off from the doctor telling me that I was going to die if I didn't have valve surgery; I started asking questions.
I didn't quite believe him and thought he was over reacting when he told me I was going to die because I walked and ran 3-5 times weekly and even did strenuous yard work. I felt fine and have 4 children aged 9-26 and kept up with them and stayed very active in things they did; but I was a ticking time bomb just waiting for the right time for my heart to stop.
He sent me to several specialists who said I had nothing really wrong, just some mild valve problems associated with aging; which was a huge relief. Everything seemed normal except my EKG's; they showed I had a huge amount of PVC's (premature ventricular contractions) roughly 50,000 âextraâ heartbeats daily.
My heart didn't really beat fully; it only quivered like a bowl of jello day in day out. The problem with it beating like this is, the heart becomes very ineffective at pumping and your cardiac output drops and heart muscle damage can occur.
The cardiologist and electrophysiologist I saw did extensive testing and recommended more testing in the hospital. I went in for a sleep study, Tilt table test and EP Study with Ablation. The sleep study revealed I had moderately severe sleep apnea and my oxygen goes from 99% down to 73% at night making it very dangerous for me when I sleep.
The tilt table test was the first inkling that something dangerous was going on inside. I fainted and had no palpable pulse; which is a very rare thing to happen. I was diagnosed with Dysautonomia - Neurocardiogenic Syncope and Orthostatic Intolerance.
I then had an ablation to burn the extra pathways in my heart and get rid of the pvc's I was living with daily. I was told this would be a relatively easy process and given a 95% success rate to get rid of the extra beats completely but it never crossed my mind that anything would happen.
What preliminary tests failed to show, is the pattern and origin of my arrhythmias were in a very dangerous spot to ablate - the RV Apex â in the bottom thin underside of the heart.
During the EP Study, I went into cardiac arrest and my heart stopped completely with no rhythm they could shock (Asystole), some how it started again for a few minutes but then stopped again. They were able to shock me back to normal sinus rhythm and luckily, the third time it stopped; it restarted on it's own so I didn't have to be shocked again.
I was diagnosed with Polymorphic Ventricular Tachycardia; a very dangerous, life threatening arrhythmia. I stayed in the hospital for 4 days trying to find a cause and to be prepped for an ICD (implantable cardiac defibrillator).
It took a cardiac catherization to finally find the problem and to show I had HOCM (obstructive Hypertrophic Cardiomyopathy) and internal high pressures in my valves.
My regular EP had to go out of town after the first procedure, so his partner had to do the implant; he wasn't as skilled as my regular dr and botched the lead implants.
When they checked the leads the next day before releasing me, they found a problem with the lead placement but the dr said it was "ok" and sent me home. Since then, I've had nothing but problems with the unit and been told by several other EP's I need to have the leads replaced and the ICD could be causing part of my problems.
Doctors think my other problems are related to HOCM (obstructive hypertrophic cardiomyopathy) and Autonomic nervous system failure and when I faint, my heart stops briefly causing damage each time this happens.
After the procedure, my body started failing from the damage it sustained the 4 times my heart stopped. My original cardiologist told me I would be in a wheel chair and totally dependent on others for everything by the time I'm 50; which is daunting because in March I'll be 45 and I can't deny the facts - my body is failing.
I was put on 10,000g sodium daily, water/fluid loading, Midodrine (insurance won't cover it $312 - 30 day supply), Propanolol, Pantoprazole, pain meds, suppression hose and binders as well as having to stay supine the majority of the day - which caused my heart failure to worsen and my EF (ejection fraction) to go down.
Nothing the doctor's have tried has helped, I still faint and my heart stops on a daily basis and I never know from one day to the next if something is going to trigger fluid build up and I have an acute attack.
In June 2011 I fainted falling into the side of my tiled tub, lacerating the side of my head in the process, severely sprained my neck and suffered a concussion. After that episode, I became a bit more cautious with every move I make because the dr found declining neurological functioning and mild brain damage; he said any more falls could lead to permanent major brain damage.
With so many previous medical bills and co-pays, I can't afford the 20% co-insurance to have my ICD replaced and Mayo Clinic wants a $5,000 deposit up front even with insurance. My ICD alone is $125,000, leads another $30,000 and then there's the doctor and hospital fees; which I won't know the cost until the procedure is done.
Each heart rhythm specialist and cardiologist I see tell me there is nothing more they can do after going over my history and treatments; I have a long hard fight to go and I have to just be thankful each day I'm alive. Some days I'm really glad I made it through, other days when the problems and pain take over; I wish the dr's had let me die.
I developed PTSD after the procedure, panic disorder and extreme agoraphobia. I went into such a deep depression over my health issues, I was afraid I would never see the lighter side of things again. I finally went to see a psychologist who prescribed Lamictal and diagnosed me with Bi-Polar disorder which has helped greatly but I still struggle on a daily basis.
One day we were just the ânormalâ every day family and the toughest thing we had to deal with is a child with Autism. Then; our whole lives changed in an instant we were dealing with mounting medical bills, expensive prescriptions, tests, appointments, loss of income and dealing with the possibility of death on a daily basis.
You just never know what the day may bring, so keep those you love close to you and never take one second for granted.
From the bottom of my heart thank you - even if it's support to say hey; I'm here if you need to talk or I know how you're feeling.
unbreak my heart....
Posted by brokenhearted on 2012-01-20 16:58:37
I'm raising funds for ICD replacement surgery, to go see a HOCM specialist (Dr. Craig Asher) at Cleveland Clinic in S. Florida and to have advanced testing through Vanderbilt Autonomic Center in Tennessee.
I don't want to admit I need help; I've always been a strong, independent person who took care of everything and everyone. In August 2009, my whole world changed. After my procedure, I applied for disability and was turned down twice and had to hire an attorney. I went from being "super" mom, wife & friend and care taker of an Autistic son to being the one who had to be taken care of.
So how did I get to the point I have to ask others for help? Shortly before Father's Day 2009, I fell and broke my foot. When it didn't heal, I went to my primary with a broken foot and came out with a broken heart. After the shock wore off from the doctor telling me that I was going to die if I didn't have valve surgery; I started asking questions.
I didn't quite believe him and thought he was over reacting when he told me I was going to die because I walked and ran 3-5 times weekly and even did strenuous yard work. I felt fine and have 4 children aged 9-26 and kept up with them and stayed very active in things they did; but I was a ticking time bomb just waiting for the right time for my heart to stop.
He sent me to several specialists who said I had nothing really wrong, just some mild valve problems associated with aging; which was a huge relief. Everything seemed normal except my EKG's; they showed I had a huge amount of PVC's (premature ventricular contractions) roughly 50,000 âextraâ heartbeats daily.
My heart didn't really beat fully; it only quivered like a bowl of jello day in day out. The problem with it beating like this is, the heart becomes very ineffective at pumping and your cardiac output drops and heart muscle damage can occur.
The cardiologist and electrophysiologist I saw did extensive testing and recommended more testing in the hospital. I went in for a sleep study, Tilt table test and EP Study with Ablation. The sleep study revealed I had moderately severe sleep apnea and my oxygen goes from 99% down to 73% at night making it very dangerous for me when I sleep.
The tilt table test was the first inkling that something dangerous was going on inside. I fainted and had no palpable pulse; which is a very rare thing to happen. I was diagnosed with Dysautonomia - Neurocardiogenic Syncope and Orthostatic Intolerance.
I then had an ablation to burn the extra pathways in my heart and get rid of the pvc's I was living with daily. I was told this would be a relatively easy process and given a 95% success rate to get rid of the extra beats completely but it never crossed my mind that anything would happen.
What preliminary tests failed to show, is the pattern and origin of my arrhythmias were in a very dangerous spot to ablate - the RV Apex â in the bottom thin underside of the heart.
During the EP Study, I went into cardiac arrest and my heart stopped completely with no rhythm they could shock (Asystole), some how it started again for a few minutes but then stopped again. They were able to shock me back to normal sinus rhythm and luckily, the third time it stopped; it restarted on it's own so I didn't have to be shocked again.
I was diagnosed with Polymorphic Ventricular Tachycardia; a very dangerous, life threatening arrhythmia. I stayed in the hospital for 4 days trying to find a cause and to be prepped for an ICD (implantable cardiac defibrillator).
It took a cardiac catherization to finally find the problem and to show I had HOCM (obstructive Hypertrophic Cardiomyopathy) and internal high pressures in my valves.
My regular EP had to go out of town after the first procedure, so his partner had to do the implant; he wasn't as skilled as my regular dr and botched the lead implants.
When they checked the leads the next day before releasing me, they found a problem with the lead placement but the dr said it was "ok" and sent me home. Since then, I've had nothing but problems with the unit and been told by several other EP's I need to have the leads replaced and the ICD could be causing part of my problems.
Doctors think my other problems are related to HOCM (obstructive hypertrophic cardiomyopathy) and Autonomic nervous system failure and when I faint, my heart stops briefly causing damage each time this happens.
After the procedure, my body started failing from the damage it sustained the 4 times my heart stopped. My original cardiologist told me I would be in a wheel chair and totally dependent on others for everything by the time I'm 50; which is daunting because in March I'll be 45 and I can't deny the facts - my body is failing.
I was put on 10,000g sodium daily, water/fluid loading, Midodrine (insurance won't cover it $312 - 30 day supply), Propanolol, Pantoprazole, pain meds, suppression hose and binders as well as having to stay supine the majority of the day - which caused my heart failure to worsen and my EF (ejection fraction) to go down.
Nothing the doctor's have tried has helped, I still faint and my heart stops on a daily basis and I never know from one day to the next if something is going to trigger fluid build up and I have an acute attack.
In June 2011 I fainted falling into the side of my tiled tub, lacerating the side of my head in the process, severely sprained my neck and suffered a concussion. After that episode, I became a bit more cautious with every move I make because the dr found declining neurological functioning and mild brain damage; he said any more falls could lead to permanent major brain damage.
With so many previous medical bills and co-pays, I can't afford the 20% co-insurance to have my ICD replaced and Mayo Clinic wants a $5,000 deposit up front even with insurance. My ICD alone is $125,000, leads another $30,000 and then there's the doctor and hospital fees; which I won't know the cost until the procedure is done.
Each heart rhythm specialist and cardiologist I see tell me there is nothing more they can do after going over my history and treatments; I have a long hard fight to go and I have to just be thankful each day I'm alive. Some days I'm really glad I made it through, other days when the problems and pain take over; I wish the dr's had let me die.
I developed PTSD after the procedure, panic disorder and extreme agoraphobia. I went into such a deep depression over my health issues, I was afraid I would never see the lighter side of things again. I finally went to see a psychologist who prescribed Lamictal and diagnosed me with Bi-Polar disorder which has helped greatly but I still struggle on a daily basis.
One day we were just the ânormalâ every day family and the toughest thing we had to deal with is a child with Autism. Then; our whole lives changed in an instant we were dealing with mounting medical bills, expensive prescriptions, tests, appointments, loss of income and dealing with the possibility of death on a daily basis.
You just never know what the day may bring, so keep those you love close to you and never take one second for granted.
From the bottom of my heart thank you - even if it's support to say hey; I'm here if you need to talk or I know how you're feeling.
Becoming a Statistic
Posted by Stilltryingbut on 2012-01-18 11:58:37
